Welcome to the Spina Bifida Resource Center! Helpful videos by medical professionals, in-depth articles and clarity about SB are the useful things you’ll find here. In addition, you’ll find state specific information such as local clinics, charities, camps for children and more. We have everything you need to make your life easier as you begin to learn more about SB.
Physical and occupational therapy are the most popular forms of Rehabilitation for SB. However, I will also be introducing Speech and Recreational therapy may be suggested for patients with speech and swallowing difficulties. Physical therapy programs are designed to parallel the normal achievement of complete motor markers. Spina Bifida Occupational therapy should be started early to compensate for motor skill deficits and should strengthen the normal developmental sequence. Recreational treatment is helpful to encourage independence by increasing play and recreational skills . Check your doctor or our map for local Spina Bifida clinics for programs or therapy services with specialized professionals.
Spina Bifida Physical Therapy
General functional expectations have been developed for patients in each lesion-level group to help direct physical therapy targets appropriately from early childhood through maturity . When dealing with cases of newborns with SB, the pediatric therapist makes a baseline of muscle function. As the child develops, the Spina Bifida physical therapist monitors joint alignment, muscle imbalances, muscle contractions, posture, and signs of gradually increasing neurologic deficits. They also provides caretakers with instruction in handling and positioning techniques, and recommends orthotic positioning instruments to stop the soft tissue contractures.
Video of some exercises for treatment of SB.
Different factors can affect the ability to ambulate for individuals with SB. The most salient factor found other than socioeconomic and therapeutic factors is the location of the malformation. Individuals who had a higher wound in the thoracic and upper lumbar spine are more likely to be in wheelchairs in comparison to those with lower lumbar and sacral malformations. Another important factor that affects the individual’s ability to walk is the use of assistive instruments, whether it is a brace, crutches or a walker. In order to promote walking capability, an assistive device may be essential . But please consult first with a pediatric or physical, occupational professionals at your local Spina Bifida clinic.
Spina Bifida Occupational Therapy
Working with a Spina Bifida Occupational therapists are another thing that should be considered. Children often have deficits in motor skills and in conducting activities of daily living (ADL). Early training with pediatric occupational therapists will correct these problems are beneficial and highly recomended. Upper-extremity stabilization and dexterous hand use require proper postural control of the head and trunk. In the first year of life, promotion of growth of these postural mechanisms or the use of passive support, if necessary, is needed to promote eye-hand coordination and manipulatory abilities. When proper fine motor skills are attained, pediatric occupational therapists educates patients in the use of adaptive instruments and other methods of self-care. Other ADL programs for preschool- and adolescent children are also affective when working with Spina Bifida occupational therapists.
Spina Bifida Recreational Therapy
Children with SB often experience limited play and recreational opportunities because of limited movements and physical restrictions. This lack of activity decreases the urge for normal development in all areas and it can produce a negative effect on their self esteem. For infant and toddlers, Recreational treatment increases chances for environmental exploration and interaction with other adolescent children with Spina Bifida. For adolescents with Spina Bifida recreational treatment provides chances for participation in accommodated sports or an exercise Spina Bifida program, which may result in a long-term interest in personal fitness and health. Recreational and physical fitness targets include enculturation, weight control, and improved fitness (e.g., flexibility, strength, working capacity, CVS fitness and coordination). Recreational treatment is helpful for encouraging independence with adult living abilities and often is used to help the patient with shopping for and purchasing personal things, use of public transportation, and development of suitable activities . Please check your local Spina Bifida clinic for programs that can help your children.
Spina Bifida Speech Therapy
It is necessary to provide specialized care to patients who require rehabilitation services for a speech deficit due to SB. The latest techniques in manual therapy and neuromuscular electrical stimulation may be integrated as part of a comprehensive treatment plan for various speech deficits. A speech and language professional is the trained person who evaluates and treats acute and chronic deficits in the areas of speech and language, cognitive-linguistic, and the ability to swallow using the latest advances and methods of practice. Visits for evaluation should be according to the following schedule:
Newborn to 1-2 month
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Fujisawa D, Gois M, Dias J, Alves E, Tavares M, Cardoso J. Intervening factors in the walking of children presenting myelomeningocele. Fisioter 2011;24:275-83.
Bier JA, Prince A, Tremont M, Msall M. Medical, functional, and social determinants of health-related quality of life in individuals with myelomeningocele. Dev Med Child Neurol 2005;47(9):609-12.
Peter Scott is a medical writer that specializes in general health and medical research surrounding Spina Bifida and other disabilities. His 15 years of experience has seen his work published in Men's Health, Disability Horizons and New Mobility Magazine. He is currently traveling around the world working as a freelance writer.
Through our content we want to empower the lives of people with SB and to promote the prevention of it through education, public awareness and research. Working together with local organizations we aim to enhance the lives of those who are affected with SB. We want to build a stronger community and create a better future for those with SB.