Building Spina Bifida Awareness Online
Local Spina Bifida Resources
We have found local resources for those with SB.
Those who are looking for state specific SB statistics, clinics, support groups, camps for children, sports and activities and more.
Click on your state on the map to find help in your area. If you have any additional resources or services we should add, please let us know!
“I DON’T see my disability as something to be ashamed of or a negative aspect of my life. It has taught me how to be creative, think outside the box and maybe even ROCK THE WORLD!”
“Our wounds are often the openings into the best and most beautiful part of us.”
What is Spina Bifida?
Spina Bifida (SB) is a relatively common birth defect which appears in 1-2 per 1000 live births worldwide. In the United States alone, there are 0.7 cases of spina bifida per 1000 live births. Spina bifida is a neural tube defect that happens during the development of the fetus while in utero. The bones of the spine in a fetus with SB do not close around the spinal cord as they should and remain unfused. Normally the neural tube closes at 3-4 weeks after conception, so this is an early neural tube defect.
