The Spina Bifida statistics for Indiana according to data collected during the years of 2003-2005 are as follows: 3.95 babies out of 10,000 births are estimated to have SB in the state of Indiana. The number of babies being born with this medical condition are rising each year.  Our research has shown that approximately 2,519 people are residing today in Indiana with this health issue.

Around 2 million women are pregnant in Indiana and some are at a high risk of delivering babies having this medical problem. An estimated 5 percent of the population (approximately 318,840 people) residing in the state of Indiana is of Hispanic origin (people of Hispanic origin are at more risk of SB).

Two Spina Bifida clinics, hospitals and doctors that are are located in the state that provides help to patients affected with this birth defect. One clinic is located in South Bend and the other is found in Indianapolis. At Indiana University/Riley Hospital for Children, the SB clinic located there registers patients affected with this condition. The SB Association of Central Indiana is responsible for providing resources and support in the state. (Ultram Online)

Spina Bifida Clinics, Hospitals or Doctors in Indiana

Riley Hospital for Children

SB Clinic

702 Barnhill Drive

ROC #1329

Indianapolis, IN 46202

Phone: 317-274-5672

Web site:


St. Joseph’s Regional Medical Center

Pediatric Specialty Clinics

720 E Cedar St, Suite 440

South Bend, IN 46617

Phone: 888-239-6126

Web site:


Spina Bifida Charity in Indiana

SBA of Indiana

Shalon Perez – Executive Director

PO Box 19814

Indianapolis, IN 46219-0814

Phone: 317-592-1630


Web site:


Spina Bifida Support Groups in Indiana

SBA of Central Indiana

P.O. Box 19814. Indianapolis, IN 46219-0814

Phone: (317) 592-1630.


Spina Bifida Camps for Children in Indiana

Camp Millhouse

25600 Kelly Rd.

South Bend, IN 46614

Contact: Lee Pitcher

Phone: (574) 233-2202

FAX: (574) 233-2511



Easter Seals ARC of Northeast Indiana

4919 Coldwater Rd

Fort Wayne, IN 46825

Contact: Sue Christman

Voice: (260) 456-4534

Fax: (260) 745-5200

Toll Free: (800) 234-7811

Email: schristman


Easter Seals Crossroads Rehabilitation Center

4740 Kingsway Drive

Indianapolis, IN 46205-1521

Contact: Scott Fogo

Voice: (317) 466-1000

Fax: (317) 466-2000



Sports & Activities in Indiana

SOLO, Inc.

P.O. Box 6221

South Bend, IN 46660




Find other Spina Bifida Organizations in Different States Below

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