The Spina Bifida statistics for New York are as follows: In this state 2.06 babies out of 10,000 babies are affected with this medical condition. The data was collected during the years 2001-2005. The data shows a decrease in the figures when compared to previous data. An estimated 4,015 people currently residing in New York have this health issue.
Around 6.3 million women are in the family way and some are at risk of delivering babies having this birth defect. The number of people in New York state of Hispanic origin is 16 percent (Hispanics traditionally are at higher risk of SB), which comes up to 3.1 million. In New York, there are eight SB clinics.
Two Spina Bifida clinics, hospitals and doctors who are are situated in New York City which provides help to patients with SB. The SB clinics are located in Buffalo, Syracuse, Rochester, Brooklyn, West Haverstraw, and Valhalla. The state has two SB Association chapters that offer aid to people affected with Spina Bifida. The SB Association of Northeast New York is in Albany and the SB Association of Nassau County can be found at Sound Beach.
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Spina Bifida Clinics, Hospitals or Doctors in New York
SUNY Down S
State University Hosp. of Brooklyn
SB Clinic
450 Clarkston Avenue
Brooklyn, NY 11203
Phone: 718-270-2042
Web site: www.uhb.org
Robert Warner Rehabilitation Center
SB Center of Western New York
219 Bryant
Buffalo, NY 14222
Phone: 716-878-7598
Web site: http://www.wchob.org
NYU Hospital for Joint Diseases
301 E. 17th Street
New York, NY 10003
Phone: 212-598-6605
Web site: http://www.med.nyu.edu/hjd/
New York Presbyterian Medical Center
Neurologic Institute
710 W 168th
New York, NY 10032
Phone: 212-342-6867
Web site: www.nyp.org
Strong Memorial Hospital
Andrew J. Kirch Developmental Services Center
601 Elmwood Avenue, Box 671
Rochester, NY 14642
Phone: 585-275-2986
Web site: www.stronghealth.com
SUNY Upstate Medical University Hospital
SB Program/Neurodevelopmental Pediatrics
725 Irving Ave.
Suite 112
Physicians Office Bldg.
Syracuse, NY 13210
Phone: 315-464-5259
Web site: http://www.upstate.edu/gch/services/programs/spina.php
Blythedale Children’s Hospital
SB Clinic
95 Bradhurst Avenue
Valhalla, NY 10595
Phone: 914-592-7555
Web site: www.blythedale.org
Helen Hayes Hospital
Spinal Cord Clinic
RT 9 W
West Haverstraw, NY 10993
Phone: 845-786-4297
Web site: www.helenhayeshospital.org
Spina Bifida Charity in New York
SBA of Northeastern New York
Karen Wentworth – Executive Director
123 Saratoga Rd
Scotia, NY 12302
Phone: 518-399-9151
Email: admin@sbaneny.org
Web site: Web: www.sbaneny.org
Spina Bifida Support Groups in New York
725 Irving Ave., Ste. 112.
Physicians Office Building Syracuse,
NY 13210 (315) 464-5259
Web site: http://sbaneny.org
SB of WNY, Inc.
137 Warner Avenue,
North Tonawanda, New York – 14120
Phone: (716) 446-5595
Email: info@sbawny.org
Web site: http://www.sbwny.org/home0.aspx
Spina Bifida Camps for Children in New York
Camp Paquatuck
P.O. Box 677
Bridget Costello
Voice: (631) 878-1070
Email: camppaquatuck@optonline.net
Web site: www.camppaquatuck.org
Children’s Bible Fellowship, Camp Hope
250 Nimham Rd
Carmel, NY 10512
Contact: Gail Cohen
Voice: (845) 225-2005, X 207
Email: camp@cbfny.org
Web site: www.cbfny.org
Cradle Beach
8038 Old Lake Shore Rd
Angola, NY 14006
Contact: Bonnie A. Brusk
Voice: (716) 549-6307 ext 206 (ext 205 for application)
Web site: www.cradlebeach.org
Easter Seals Camp Colonie
292 Washington Ave Extension,Suite 112
Albany, NY 12203
Contact: Chuck Paravella
Voice: (518) 426-0251
Email: info@ny.easter-seals.org
Web site: http://ny.easterseals.com
Wagon Road Camp
431 Quake Rd
Chappaqua, NY 10514
Contact: Vince Canziani
Voice: (914) 238-4761
Web site: www.childrensaidsociety.org/wagon-road-camp/respite-services
Sports & Activities in New York
Lothlorien Therapeutic
Riding Center
15 Reiter Road
East Aurora, NY 14052
Phone: (716) 655-1335
Fax: (716) 655-2972
Email: Info@lothlorientrc.org
Web site: http://lothlorientrc.org/
Reservations – 716 – 699-3504
Lounsbury Adaptive Ski Program
Holiday Valley Resort
P.O. Box 370
Ellicottville, NY 14731
Program Director – Mary Ellen Racich
Email: ski@lounsburyadaptive.org
Web site: http://www.lounsburyadaptive.org/
Great LakesWAter Sport Institute, Inc
3621 Stony pt. Rd.
Grand Island, NY 14072
(716) 553-7670
Email: info@wnyadaptivewatersports.org
Web site: www.wnyadaptivewatersports.org
4635 Union Rd
Buffalo,
NY 14225, United States
+1 716-505-5700
Web site: http://www.stride.org/
Adaptive Sports ~ 476 North Greenbush Rd
Suite 9~ Rensselaer, NY 12144
Phone: 518-598-1279
Fax: 518-391-2563
Email: info@stride.org
Web site: http://www.glidingstars.org/rochester.html
Gliding Stars, Inc.
National Headquarters Office
1412 Sweet Home Road, Suite 3
Amherst, New York, 14228-2778 USA
Phone: (716) 608-8345
Fax: (716) 608-8346
Email: infogs@glidingstars.org
Web site: http://www.glidingstars.org/
Gliding Stars of Rochester
1900 Empire Blvd, #261
Webster, NY 14580-1993
Phone: (585) 503-2654
Email: rocnya@glidingstars.org
Web site: http://www.glidingstars.org/saratoga.html
Adaptive Sports Foundation
PO Box 266
100 Silverman Way
Windham, NY 12496
(518) 734-5070 – phone
(518) 734-6740 – fax
Email: asfwindham@mhcable.com
Web site: http://www.adaptivesportsfoundation.org/