The Spina Bifida statistics for New York are as follows: In this state 2.06 babies out of 10,000 babies are affected with this medical condition. The data was collected during the years 2001-2005. The data shows a decrease in the figures when compared to previous data. An estimated 4,015 people currently residing in New York have this health issue.

Around 6.3 million women are in the family way and some are at risk of delivering babies having this birth defect. The number of people in New York state of Hispanic origin is 16 percent (Hispanics traditionally are at higher risk of SB), which comes up to 3.1 million. In New York, there are eight SB clinics.

Two Spina Bifida clinics, hospitals and doctors who are are situated  in New York City which provides help to patients with SB. The SB clinics are located in Buffalo, Syracuse, Rochester, Brooklyn, West Haverstraw, and Valhalla. The state has two SB Association chapters that offer aid to people affected with Spina Bifida. The SB Association of Northeast New York is in Albany and the SB Association of Nassau County can be found at Sound Beach.

Spina Bifida Clinics, Hospitals or Doctors in New York

SUNY Down S

State University Hosp. of Brooklyn

SB Clinic

450 Clarkston Avenue

Brooklyn, NY 11203

Phone: 718-270-2042

Web site: www.uhb.org

 

Robert Warner Rehabilitation Center

SB Center of Western New York

219 Bryant

Buffalo, NY 14222

Phone: 716-878-7598

Web site: http://www.wchob.org

 

NYU Hospital for Joint Diseases

301 E. 17th Street

New York, NY 10003

Phone: 212-598-6605

Web site: http://www.med.nyu.edu/hjd/

 

New York Presbyterian Medical Center

Neurologic Institute

710 W 168th

New York, NY 10032

Phone: 212-342-6867

Web site: www.nyp.org

 

Strong Memorial Hospital

Andrew J. Kirch Developmental Services Center

601 Elmwood Avenue, Box 671

Rochester, NY 14642

Phone: 585-275-2986

Web site: www.stronghealth.com

 

SUNY Upstate Medical University Hospital

SB Program/Neurodevelopmental Pediatrics

725 Irving Ave.

Suite 112

Physicians Office Bldg.

Syracuse, NY  13210

Phone: 315-464-5259

Web site: http://www.upstate.edu/gch/services/programs/spina.php

 

Blythedale Children’s Hospital

SB Clinic

95 Bradhurst Avenue

Valhalla, NY 10595

Phone: 914-592-7555

Web site: www.blythedale.org

 

Helen Hayes Hospital

Spinal Cord Clinic

RT 9 W

West Haverstraw, NY 10993

Phone: 845-786-4297

Web site: www.helenhayeshospital.org

 

Spina Bifida Charity in New York

SBA of Northeastern New York

Karen Wentworth – Executive Director

123 Saratoga Rd

Scotia, NY 12302

Phone: 518-399-9151

Email: admin@sbaneny.org

Web site: Web: www.sbaneny.org

 

 

 

Spina Bifida Support Groups in New York

725 Irving Ave., Ste. 112.

Physicians Office Building Syracuse,

NY 13210 (315) 464-5259

Web site: http://sbaneny.org

 

SB of WNY, Inc.

137 Warner Avenue,

North Tonawanda, New York – 14120

Phone: (716) 446-5595

Email:  info@sbawny.org

Web site: http://www.sbwny.org/home0.aspx

 

Spina Bifida Camps for Children in New York

Camp Paquatuck

P.O. Box 677

Bridget Costello

Voice: (631) 878-1070

Email: camppaquatuck@optonline.net

Web site: www.camppaquatuck.org

 

Children’s Bible Fellowship, Camp Hope

250 Nimham Rd

Carmel, NY 10512

Contact: Gail Cohen

Voice: (845) 225-2005, X 207

Email: camp@cbfny.org

Web site: www.cbfny.org

 

Cradle Beach

8038 Old Lake Shore Rd

Angola, NY 14006

Contact: Bonnie A. Brusk

Voice: (716) 549-6307 ext 206 (ext 205 for application)

Web site: www.cradlebeach.org

 

Easter Seals Camp Colonie

292 Washington Ave Extension,Suite 112

Albany, NY 12203

Contact: Chuck Paravella

Voice: (518) 426-0251

Email: info@ny.easter-seals.org

Web site: http://ny.easterseals.com

Wagon Road Camp

431 Quake Rd

Chappaqua, NY 10514

Contact: Vince Canziani

Voice: (914) 238-4761

Web site: www.childrensaidsociety.org/wagon-road-camp/respite-services

 

Sports & Activities in New York

Lothlorien Therapeutic

Riding Center

15 Reiter Road

East Aurora, NY 14052

Phone: (716) 655-1335

Fax: (716) 655-2972

Email: Info@lothlorientrc.org

Web site: http://lothlorientrc.org/

 

Reservations – 716 – 699-3504

Lounsbury Adaptive Ski Program

Holiday Valley Resort

P.O. Box 370

Ellicottville, NY 14731

Program Director – Mary Ellen Racich

Email: ski@lounsburyadaptive.org

Web site: http://www.lounsburyadaptive.org/

 

Great LakesWAter Sport Institute, Inc

3621 Stony pt. Rd.

Grand Island, NY 14072

(716) 553-7670

Email: info@wnyadaptivewatersports.org

Web site: www.wnyadaptivewatersports.org

 

4635 Union Rd

Buffalo,

NY 14225, United States

+1 716-505-5700

Web site: http://www.stride.org/

 

Adaptive Sports ~ 476 North Greenbush Rd

Suite 9~ Rensselaer, NY 12144

Phone: 518-598-1279

Fax: 518-391-2563

Email: info@stride.org

Web site: http://www.glidingstars.org/rochester.html

 

Gliding Stars, Inc.

National Headquarters Office

1412 Sweet Home Road, Suite 3

Amherst, New York, 14228-2778 USA

Phone: (716) 608-8345

Fax: (716) 608-8346

Email: infogs@glidingstars.org

Web site: http://www.glidingstars.org/

 

Gliding Stars of Rochester

1900 Empire Blvd, #261

Webster, NY 14580-1993

Phone: (585) 503-2654

Email: rocnya@glidingstars.org

Web site: http://www.glidingstars.org/saratoga.html

 

Adaptive Sports Foundation

PO Box 266

100 Silverman Way

Windham, NY 12496

(518) 734-5070 – phone

(518) 734-6740 – fax

Email: asfwindham@mhcable.com

Web site: http://www.adaptivesportsfoundation.org/

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