The Spina Bifida statistics for California are as follows: Out of 10,000 births, 2.08 babies are being born with this medical condition. Cases of this medical problem affecting babies are on the rise. The above figure was based on data which was collected during the years from 2001-2005.
In the state of California 7,645 people have been affected with SB. There are currently 11.6 million women who are of child bearing age. Many are very much at risk of giving birth to babies born with this birth defect. Approximately 36 percent of the people residing in the state of California are of Hispanic origin (which have a higher risk of giving birth to babies with SB compared to other races). This represents 13 million people.
In California, fifteen clinics, hospitals and doctors who specialize in caring for adults and children with Spina Bifida. In Los Angeles, four Spina Bifida clinics, hospitals and doctors that are located and two SB clinics can be found at Oakland. SB clinics can be found also at San Bernardino, San Francisco, San Jose, San Diego, Orange County, Downey, and Long Beach.
At Los Angeles, the clinic which is located at the Children’s Hospital is the registry site for patients affected with SB.
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Spina Bifida Clinics, Hospitals and Doctors in California
National Rehabilitation Center
7601 Imperial Hwy.
JPI 3145
Downey, CA 90242
Phone: 562-401-7111
Website: www.rancho.org
Children’s Hospital and Research Center – Oakland SB Clinic
747 52nd Street
Oakland, CA 94609
Phone: 510-428-3655
Website: www.childrenshospitaloakland.org
Miller Children’s Hospital
Myelomeningocele Center
2801 Atlantic Avenue
Long Beach, CA 90806
Phone: 562-933-8832
Website: www.memorialcare.org
Children’s Hospital of Los Angeles
SB Center
4560 Sunset Blvd.
Los Angeles, CA 90027
Phone: 323-361-2384
Website: www.childrenshospitalla.org
LAC/USC MED. CTR. Women’s and Children’s
SB Clinic
1240 N Mission Road, RM L902
Los Angeles, CA 90033
Phone: 323-226-3691
Website: www.uscpediatrics.com
Los Angeles Orthopaedic Medical Center
SB Department
2400 S. Flower Street
2nd Floor
Los Angeles, CA 90007
Phone: 213-741-8365
Website: www.orthohospital.org
Shriners Hospital for Children – Los Angeles
Myelodysplasja Clinic
3160 Geneva Street
Los Angeles, CA 90020
Phone: 213-388-3151
Children’s Hospital Central California
9300 Valley Children’s Place
Madera, CA 93638
Phone: 559-353-6195
Kaiser Permanente Medical Center
N. CA Kaiser Regional SB Clinic
280 W. MacArthur Blvd
Oakland, CA 94611
Phone: 510-752-6919
Children’s Hospital Orange County
SB Clinic
455 S. Main Street
Orange, CA 92868
Phone: 714-532-8497
Website: www.choc.org
Shriners Hospital for Children – Northern California
SB Clinic
2425 Stockton Blvd.
Sacramento, CA 95817
Phone: 916-453-2059
Website: http://www.shrinershq.org/Hospitals/Main/
Loma Linda University Children’s Hospital
SB Team Center
(Includes an Adult SB Clinic)
2195 Club Center Drive
Suite G
San Bernardino, CA 92408
Phone: 909-835-1816
Website: www.llu.edu/lluch/
Rady Children’s Hospital
Spina Defects Clinic
3020 Children’s Way
San Diego, CA 92123
Phone: 858-576-1700
Website: www.chsd.org
University of California San Francisco Children’s Hospital
SB/Pediatrics Specialties Clinic
505 Parnassus Avenue
San Francisco, CA 94143
Phone: 415-476-3899
Website: http://www.ucsfhealth.org/childrens/
Santa Clara Valley Medical Center
Pediatric Specialties
SB Clinic
750 S. Bascom Avenue
San Jose, CA 95128
Phone: 408-885-4780
Website: www.sccgov.org
Spina Bifida Charity in California
SBA of California
Christi Rauth
National Walk Manager
3250 Wilshire Blvd., Suite 500
Los Angeles, CA 90010
Phone: 310-359-9611
Email: crauth@sbaa.org
Webite: www.sbaofca.org
PHP Community and Family Services
Phone: 408-727-5775
Fax: 408-286-1116
Email Address: info@php.com
Website: http://www.php.com/support/spina-bifida-support-group
SB of San Diego
P.O. Box 232272
San Diego, CA 92193-2272
Voicemail (619) 491-9018
Website: http://spinabifidasandiego.com/
Spina Bifida Support Groups in California
SB San Diego
P.O. Box 232272
858-688-8673
Voicemail (619) 491-9018
Email: gallego.marcia@gmail.com
Website: http://spinabifidasandiego.com/
Spina Bifida Camps for Children in California
AbilityFirst, Camp Paivika
600 Playground Drive
Crestline, CA 92325
Contact: Kelly Kunsek, Camp Director
Phone: (909) 338-1102
Fax (909) 338-2502
Email: kkunsek@abilityfirst.org
Website: www.abilityfirst.org/camppaivika
Camp Krem
102 Brook Lane
Boulder Creek, CA 95006
Contact: Mary Farfaglia
Voice: (510) 222-6662
Email: info@campingunlimited.org
Website: www.campingunlimited.org
Camp Ronald McDonald at Eagle Lake
2255 49th St.
Sacramento, CA 95817
Contact: Vicky Flaig
Voice: (916)724-4230
Email: vicky@campronald.org
Website: www.campronald.org
Easter Seals Bay Area, Kaleidoscope After-School Program
7425 Larkdale Avenue
Dublin, CA 94568
Contact: Jennifer Cowherd
Voice: (925) 828-8857
Fax: (925) 828-5245
Email: jcowherd@esba.org
Website: www.bayarea.easterseals.com
Easter Seals Central California, (Administrative activities only for Camp Harmon)
9010 Soquel Drive
Aptos, CA 95003-4002
Contact: June Stockbridge, Monica Alvarez
Voice: (831) 684-2166 X113
Fax: (831) 684-1018
TTY: (831) 684-1054
Email: jstockbridge@es-cc.org
Website: www.centralcal.easterseals.com
Easter Seals of Central California, Camp Harmon
16403 Hwy 9
Boulder Creek, CA 95006
Contact: June Stockbridge, Monica Alvarez
Voice: (831) 684-2380 (camp kitchen phone only)
Fax: (831) 684-1018
Email: junes@es-cc.org
Website: http://centralcal.easterseals.com
Easter Seals Northern California (no camp for 2012)
20 Pimentel Ct, Ste A-1
Novato, CA 94949
Contact: Kristin Johnson
Voice: (415) 382-7450, 707 584 1443
Fax: (415) 382-6052
TTY: (415) 382-7454
Email: kjohnson@noca.easterseals.com
Website: www.noca.easterseals.com
Easter Seals Southern California
710 W. Broadway
Glendale, CA 91204
Contact: Lupe Trevizo-Reinoso
Voice: (818) 551-0128
Fax: (818) 551-9846
Toll Free: (800) 303-0128
Email: lupe.trevizoreinoso@essc.org
Website: www.southerncal.easterseals.com
Easter Seals Southern California, San Bernardino Camp Oakes
401 S. Ivy Street
Escondido, CA 92025
Contact: Debbie Ball
Voice: (760) 482-2777
Fax: (760) 432-8549
Email Address: debbie.ball@essc.org
Website: www.southerncal.easterseals.com
Easter Seals Tri-Counties
10730 Henderson Road
Ventura, CA 93004-1898
Contact: Mary London
Voice: (805) 647-1141
Fax: (805) 659-5274
Email: mlondon@eastersealstc.org
Website: www.eastersealstc.org
The Painted Turtle
17000 Elizabeth Lake Rd
Lake Hughes, CA 93532
Contact: Rosalyn Skelton
Voice: (661) 724-1550
Email: info@thepaintedturtle.org
Website: www.thepaintedturtle.org
Sports & Activities in California
Disabled Sports USA Far West
Alpine Meadows Rd,
Alpine Meadows, CA 96145
(530) 581-4161
Website: http://www.dsusafw.org/
Adaptive Action Sports
South Lake Tahoe
760-846-1076
Email: info@adacs.org
Website: http://www.adacs.org
U.S. Adaptive Recreation Center
43101 Goldmine Drive
Big Bear Lake, CA 92315
909-584-0269
Email: mail@usarc.org
Website: http://usarc.org/
Life Rolls On
400 Corporate Pointe
Suite 525
Culver City 90230
310-807-5488
Website: http://www.liferollson.org/site/c.9rJLK3MLJfLWH/b.7882153/k.673B/They_Will_Surf_Again.htm
Disabled Sports USA Orange County “The Achievers”
3754 Hamilton Street,
Irvine CA 92614
Website: http://theachievers.org/
The Unrecables
P.O. Box 24856
Los Angeles, CA 90024-0856
Email: info@unrecables.org
Website: http://www.unrecables.com/
Leaps…n…Boundz
5433 Beethoven St
Los Angeles, CA 90066
Tel: (310) 821-0963
Fax: (310)821-3264
E-mail: info@leapsnboundz.com
Website: http://leapsnboundz.com/
Disabled Sports Eastern Sierra
Post Office Box 7275
Mammoth Lakes,
California 93546-7275
Email: info@disabledsportseasternsierra.org
Website: http://www.disabledsportseasternsierra.org/
Shasta Disabled Sports U.S.A.,
PO Box 191, Mount Shasta,
CA, 96067
Phone: 530-925-1531
Email: info@shastadsusa.org
Website: http://www.shastadsusa.org/
Adaptive Athletics Association
80947 Serenity Ave
Indio, CA – 92201
USA
Email: AAA@adaptiveathletics.org
Website: http://www.adaptiveathletics.org/site/
Adaptive Sports & Recreation Association (ASRA)
P.O. Box 153792
San Diego, CA 92195
http://www.adaptivesportsandrec.org/
The Santa Ana Barrier Free Park
PO Box 1256,
Santa Ana,
CA. 92702
714-835-3538
Email: amezcualgsrvcs@aol.com
Website: http://www.kiwanissantaana.com/public/pub_page.aspx?PageID=69726
Swim With Heart
TeamUnify, LLC
PO Box 2321
Bend, OR 97709
Website: http://www.swimwithheart.org/