The Spina Bifida statistics for California are as follows: Out of 10,000 births, 2.08 babies are being born with this medical condition. Cases of this medical problem affecting babies are on the rise. The above figure was based on data which was collected during the years from 2001-2005.

In the state of California 7,645 people have been affected with SB. There are currently 11.6 million women who are of child bearing age. Many are very much at  risk of giving birth to babies born with this disease. Approximately 36 percent of the people residing in the state of California are of Hispanic origin (which have a higher risk of giving birth to babies with SB compared to other races). This represents  13 million people.

In California, fifteen clinics are found which provide help and assistance for people suffering from this health issue. In Los Angeles, four SB clinics are located and two SB clinics can be found at Oakland. SB clinics can be found also at San Bernardino, San Francisco, San Jose, San Diego, Orange County, Downey, and Long Beach.

At Los Angeles, the clinic which is located at the Children’s Hospital is the registry site for patients affected with SB.

Spina Bifida Clinics in California

National Rehabilitation Center

7601 Imperial Hwy.

JPI 3145

Downey, CA 90242

Phone: 562-401-7111

Website: www.rancho.org

 

Children’s Hospital and Research Center – Oakland SB Clinic

747 52nd Street

Oakland, CA 94609

Phone: 510-428-3655

Website: www.childrenshospitaloakland.org

 

Miller Children’s Hospital

Myelomeningocele Center

2801 Atlantic Avenue

Long Beach, CA 90806

Phone: 562-933-8832

Website: www.memorialcare.org

 

Children’s Hospital of Los Angeles

SB Center

4560 Sunset Blvd.

Los Angeles, CA 90027

Phone: 323-361-2384

Website: www.childrenshospitalla.org

 

LAC/USC MED. CTR. Women’s and Children’s

SB Clinic

1240 N Mission Road, RM L902

Los Angeles, CA 90033

Phone: 323-226-3691

Website: www.uscpediatrics.com

 

Los Angeles Orthopaedic Medical Center

SB Department

2400 S. Flower Street

2nd Floor

Los Angeles, CA 90007

Phone: 213-741-8365

Website: www.orthohospital.org

 

Shriners Hospital for Children – Los Angeles

Myelodysplasja Clinic

3160 Geneva Street

Los Angeles, CA 90020

Phone: 213-388-3151

 

Children’s Hospital Central California

9300 Valley Children’s Place

Madera, CA 93638

Phone: 559-353-6195

 

Kaiser Permanente Medical Center

N. CA Kaiser Regional SB Clinic

280 W. MacArthur Blvd

Oakland, CA 94611

Phone: 510-752-6919

 

Children’s Hospital Orange County

SB Clinic

455 S. Main Street

Orange, CA 92868

Phone: 714-532-8497

Website: www.choc.org

 

Shriners Hospital for Children – Northern California

SB Clinic

2425 Stockton Blvd.

Sacramento, CA 95817

Phone: 916-453-2059

Website: http://www.shrinershq.org/Hospitals/Main/

 

Loma Linda University Children’s Hospital

SB Team Center

(Includes an Adult SB Clinic)

2195 Club Center Drive

Suite G

San Bernardino, CA 92408

Phone: 909-835-1816

Website: www.llu.edu/lluch/

 

Rady Children’s Hospital

Spina Defects Clinic

3020 Children’s Way

San Diego, CA 92123

Phone: 858-576-1700

Website: www.chsd.org

 

University of California San Francisco Children’s Hospital

SB/Pediatrics Specialties Clinic

505 Parnassus Avenue

San Francisco, CA 94143

Phone: 415-476-3899

Website: http://www.ucsfhealth.org/childrens/

 

Santa Clara Valley Medical Center

Pediatric Specialties

SB Clinic

750 S. Bascom Avenue

San Jose, CA  95128

Phone: 408-885-4780

Website: www.sccgov.org

 

Spina Bifida Charity in California

SBA of California

Christi Rauth

National Walk Manager

3250 Wilshire Blvd., Suite 500

Los Angeles, CA 90010

Phone: 310-359-9611

Email: crauth@sbaa.org

Webite: www.sbaofca.org

PHP Community and Family Services

Phone: 408-727-5775

Fax: 408-286-1116

Email Address: info@php.com

Website: http://www.php.com/support/spina-bifida-support-group

SB of San Diego

P.O. Box 232272

San Diego, CA 92193-2272

Voicemail (619) 491-9018

Website: http://spinabifidasandiego.com/

Spina Bifida Support Groups in California

SB San Diego

P.O. Box 232272

858-688-8673

Voicemail (619) 491-9018

Email: gallego.marcia@gmail.com

Website: http://spinabifidasandiego.com/

 

Spina Bifida Camps for Children in California

AbilityFirst, Camp Paivika
600 Playground Drive
Crestline, CA 92325
Contact: Kelly Kunsek, Camp Director
Phone: (909) 338-1102
Fax (909) 338-2502
Email: kkunsek@abilityfirst.org
Website: www.abilityfirst.org/camppaivika

Camp Krem
102 Brook Lane
Boulder Creek, CA 95006
Contact: Mary Farfaglia
Voice: (510) 222-6662
Email: info@campingunlimited.org
Website: www.campingunlimited.org

Camp Ronald McDonald at Eagle Lake
2255 49th St.
Sacramento, CA 95817
Contact: Vicky Flaig
Voice: (916)724-4230
Email: vicky@campronald.org
Website: www.campronald.org

Easter Seals Bay Area, Kaleidoscope After-School Program
7425 Larkdale Avenue
Dublin, CA 94568
Contact: Jennifer Cowherd
Voice: (925) 828-8857
Fax: (925) 828-5245
Email: jcowherd@esba.org
Website: www.bayarea.easterseals.com

Easter Seals Central California, (Administrative activities only for Camp Harmon)
9010 Soquel Drive
Aptos, CA 95003-4002
Contact: June Stockbridge, Monica Alvarez
Voice: (831) 684-2166 X113
Fax: (831) 684-1018
TTY: (831) 684-1054
Email: jstockbridge@es-cc.org
Website: www.centralcal.easterseals.com

Easter Seals of Central California, Camp Harmon
16403 Hwy 9
Boulder Creek, CA 95006
Contact: June Stockbridge, Monica Alvarez
Voice: (831) 684-2380 (camp kitchen phone only)
Fax: (831) 684-1018
Email: junes@es-cc.org
Website: http://centralcal.easterseals.com

Easter Seals Northern California (no camp for 2012)
20 Pimentel Ct, Ste A-1
Novato, CA 94949
Contact: Kristin Johnson
Voice: (415) 382-7450, 707 584 1443
Fax: (415) 382-6052
TTY: (415) 382-7454
Email: kjohnson@noca.easterseals.com
Website: www.noca.easterseals.com

Easter Seals Southern California
710 W. Broadway
Glendale, CA 91204
Contact: Lupe Trevizo-Reinoso
Voice: (818) 551-0128
Fax: (818) 551-9846
Toll Free: (800) 303-0128
Email: lupe.trevizoreinoso@essc.org
Website: www.southerncal.easterseals.com

Easter Seals Southern California, San Bernardino Camp Oakes
401 S. Ivy Street
Escondido, CA 92025
Contact: Debbie Ball
Voice: (760) 482-2777
Fax: (760) 432-8549
Email Address: debbie.ball@essc.org
Website: www.southerncal.easterseals.com

Easter Seals Tri-Counties
10730 Henderson Road
Ventura, CA 93004-1898
Contact: Mary London
Voice: (805) 647-1141
Fax: (805) 659-5274
Email: mlondon@eastersealstc.org
Website: www.eastersealstc.org

The Painted Turtle
17000 Elizabeth Lake Rd
Lake Hughes, CA 93532
Contact: Rosalyn Skelton
Voice: (661) 724-1550
Email: info@thepaintedturtle.org
Website: www.thepaintedturtle.org

 

Sports & Activities in California

Disabled Sports USA Far West

Alpine Meadows Rd,

Alpine Meadows, CA 96145

(530) 581-4161

Website: http://www.dsusafw.org/

 

Adaptive Action Sports

South Lake Tahoe

760-846-1076

Email: info@adacs.org

Website: http://www.adacs.org

 

U.S. Adaptive Recreation Center

43101 Goldmine Drive

Big Bear Lake, CA 92315

909-584-0269

Email: mail@usarc.org

Website: http://usarc.org/

 

Life Rolls On

400 Corporate Pointe

Suite 525

Culver City 90230

310-807-5488

Website: http://www.liferollson.org/site/c.9rJLK3MLJfLWH/b.7882153/k.673B/They_Will_Surf_Again.htm

 

Disabled Sports USA Orange County “The Achievers”

3754 Hamilton Street,

Irvine CA 92614

Website: http://theachievers.org/

 

The Unrecables

P.O. Box 24856

Los Angeles, CA 90024-0856

Email: info@unrecables.org

Website: http://www.unrecables.com/

 

Leaps…n…Boundz

5433 Beethoven St

Los Angeles, CA 90066

Tel: (310) 821-0963

Fax: (310)821-3264

E-mail: info@leapsnboundz.com

Website: http://leapsnboundz.com/

 

Disabled Sports Eastern Sierra

Post Office Box 7275

Mammoth Lakes,

California 93546-7275

Email: info@disabledsportseasternsierra.org

Website: http://www.disabledsportseasternsierra.org/

 

Shasta Disabled Sports U.S.A.,

PO Box 191, Mount Shasta,

CA, 96067

Phone: 530-925-1531

Email: info@shastadsusa.org

Website: http://www.shastadsusa.org/

Adaptive Athletics Association

80947 Serenity Ave

Indio, CA – 92201

USA

Email: AAA@adaptiveathletics.org

Website: http://www.adaptiveathletics.org/site/

 

Adaptive Sports & Recreation Association (ASRA)

P.O. Box 153792

San Diego, CA 92195

http://www.adaptivesportsandrec.org/

The Santa Ana Barrier Free Park

PO Box 1256,

Santa Ana,

CA.  92702

714-835-3538

Email: amezcualgsrvcs@aol.com

Website: http://www.kiwanissantaana.com/public/pub_page.aspx?PageID=69726

 

Swim With Heart

TeamUnify, LLC

PO Box 2321

Bend, OR 97709

Website: http://www.swimwithheart.org/