The Spina Bifida statistics for West Virginia are as follows: About 2.91 babies out of 10,000 births are affected with this disease. The data was collected during the period of 2000-2004. The number of women who are due to give birth has not been tracked. Our research has shown that the number of people with this medical problem residing in the state of West Virginia is approximately 2,200.

There are two SB clinics present in West Virginia, the Children with Special Health Care Needs and West Virginia University Medical Center. Both the SB clinics are located at Morgantown and provide assistance to patients affected with this health issue. The SB Association of the Mid-Atlantic Region (SBAMAR) is responsible for providing resources for people affected with SB.

Spina Bifida Clinics in West Virginia

Children with Special Health Care Needs

Physician Office Center

Medical Center Drive

Morgantown, WV 2650l

Phone: 304-598-4830

 

West Virginia University Medical Center

Myelo Clinic

Medical Center Drive

Morgantown, WV 26506

Phone: 304-598-4830

 

Spina Bifida Charity in West Virginia

SB Association of the Mid-Atlantic Region (SBAMAR)

Sara Struwe

4590 MacArthur Blvd. NW

Suite 250

Washington, DC 20007

800-621-3141

Web site: http://www.sbamar.org/

 

Spina Bifida Camps for Children in West Virginia

Easter Seals West Virginia

1305 National Road

Wheeling, WV 26003-5780

Contact: Lorie Untch

Voice: (304) 242-1390

Fax: (304) 243-5880

TTY: (304) 242-1390

Toll Free: (800) 677-1390

Email: luntch@wv.easterseals.com

Web site: www.wv.easterseals.com

 

Sports & Activities in West Virginia

River Cities Therapy and Recreation Center, Inc. (RCTRC, Inc.)

(formerly River Cities Therapeutic Riding Center, Inc.)

304-743-5267 or 304-634-1845

2216 Newman’s Branch Road

Milton, WV 25541

Web site: http://rctrc.org/

 

David Begg

10 Snowshoe Drive

Snowshoe, WV 26209

Phone: (304) 572-6708

Email: dbegg@snowshoemountain.com

Web site: http://cawvsports.org/