The Spina Bifida statistics for Massachusetts are as follows: Around 1.61 babies out of 10,000 births are born affected with this disease. The data was collected during the period of 2001-2005. The data shows a significant decrease  in the number of births with this medical problem. An estimated 1,046 people are residing in Massachusetts with this health issue.

The state of Massachusetts has around 2.1 million women who are at some risk of delivering babies born with SB. Around 8.6 percent of the population, which equals 550 thousand are of Hispanic origin (Hispanic people are more susceptible to giving birth to children with SB).

There are five SB clinics in the state that provide help and assistance to patients affected with this health problem. In Boston there are three clinics and one SB clinic is located at Canton, while the other SB clinic is located  at Springfield. The SB Association of Massachusetts is responsible for offering aid and support services to people affected with SB in the state.

Spina Bifida Clinics in Massachusetts

Children’s Hospital

Myelodysplasia Clinic

300 Longwood Ave., Fegan 3

Boston, MA 02115

Phone: 617-355-7704

Web site: http://www.childrenshospital.org/

 

Massachusetts General Hospital

Pediatric Orthopaedics

SB Clinic

55 Fruit Street, Ste 3400 E

Boston, MA 02114

Web site: www.massgeneral.org

 

New England Medical Center

Myelodysplasia Clinic

750 Washington Street, #340

Boston, MA 02111

Phone: 617-636-5452

Web site: www.tufts-nemc.org

 

Massachusetts Hospital School (DPH)

3 Randolph Street

Canton, MA 02021

Phone: 781-828-2440

Web site: www.mhsf.us

 

Shriner’s Hospital for Children

Myelodysplasia Clinic

516 Carew Street

Springfield, MA 01104

Phone: 413-735-1234

Website: www.shrinershq.org

 

Spina Bifida Charity in Massachusetts

SBA of Greater New England (Formerly SBA of Massachusetts)

219 East Main St

Suite 100B

Milford, MA 01757

Phone: 508-482-5300

Toll Free: 888-479-1900

Fax: 508-482-5301

Email: edugan@SBAGreaterNE.org

Web site: www.SBAGreaterNE.org

 

Spina Bifida Support Groups in Massachusetts

SBAGNE

219 East Main St. Ste 100B

Milford, MA 01757

Web site: http://sbagreaterne.org/

Spina Bifida Camps for Children in Massachusetts

Camp Howe

P.O. Box 326

Goshen, MA 01032

Contact: Terrie Campbell

Voice: (860) 638-7475

Email: office@camphowe.com

Web site: www.camphowe.com

 

Easter Seals Massachusetts

89 South Street

Boston, MA 02111

Contact: Colleen Flanagan

Voice: (508) 757-2756

Fax: (508) 831-9768

TTY: (800) 564-9700

Toll Free: (800) 244-2756

Email: info@eastersealsma.org

Web site: www.ma.easterseals.com

 

Sports & Activities in Massachusetts

AccesSportAmerica
119 High Street

Acton, MA 01720

978.264.0985
Toll Free: 866.45.SPORT (77678)

Email: betty@accessportamerica.org

Web site: http://www.accessportamerica.org/

 

Cape Able Adventures

51 Chipman Road

Sandwich, MA 02563

508-566-3298

Email: cmbautz@capeableadventures.org

Web site: http://www.capeableadventures.org/